The birth of the Leiomyosarcoma (LMS) quilt was in August of 2000 when Lynda of Florida asked the L-M-Sarcoma on line support group about creating an awareness project. The public needs to know about this deadly and incurable Orphan Cancer. That’s when Karen Gibson suggested making a quilt. This idea took flight right away. The LMS quilt is similar to the Aids quilt with the exception that this is a true quilt. There are three layers that make up the LMS Quilt. There will be many sections that make up the LMS Quilt. The Aids quilt squares have a hem or only a backing. The sections of the LMS Quilt will travel across the country and be in different locations at the same time.  Bobbie Keller is the guardian of these quilts.

The squares of the LMS quilt are for LMS victims only. The victims of LMS refer to this cancer as the "dragon". The squares represent loved ones fighting this cancer or who have lost their battle with the "dragon".  Everyone does not sew, they will use fabric paint, fabric pigment pens, photo transfers, etc. Each quilt square tells it’s own story about the person it represents.

One of our patrons, CANA MACHINE QUILTING of Oyster Bay, NY machine quilted the layers of Section #1  Our patron, Marge Geary of the Evening Star Quilters of Mineola, NY machine quilted the layers of Section #2 and hand stitched the binding.  The LMS Quilts have traveled across most of the continental United States and back again and have even debuted in Canada.

We truly appreciate the help and generosity our patrons have showered us with.

The quilt is helping our list family by bringing them the love and hugs from the rest of the family. Until you've seen the quilt or the look in people's eyes when they see the quilt, you can't fully feel what this project is all about.

Kathy in N. Las Vegas received the quilt when she was at a low point in her life because the disease was ravaging her body. She wrapped herself up in the quilt and it brought a smile to her face and tears to her eyes. Kathy has the courage to continue fighting.  Jack in New Mexico received the quilt just when he needed the support and love from the list the most. He had just found out he has a recurrence. Jack and Susan spoke with their local newspaper and an article was written about Jack, LMS, and the quilt, complete with pictures.

There are currently two completed quilts and the third one is well on its way to being completed.  We enourage families, friends, and social groups that have a loved one with LMS to show their support and creativity by "Building a Square"  If you’re interested in making an LMS quilt square for yourself or a loved one, please e-mail Bobbie Keller – Kellerpjbw@aol.com  for details.