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The Dragon Slayer Newsletter

Oline Edition #1 June 2008

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Slay the LMS Dragon!

News From
HugFest 2008


Another successfull HugFest!  Everyone had a good time and we had quite a few first timers.  The weather was great for all the planned activities. 
We began Thursday afternoon and evening in the hotel lobby for the meet and greet.  Friday morning it was load up and head out to downtwon Philly to Pennsylvania Hospital for program and tour.  Then everytone hopped on the trolleys and toured downtown Philly.  We met back at the hotel for a great dinner  and an evening of getting to know each other and talk to others that we have so much in common with.  Saturday is the big day that most people try to attend.  We had a wonderful brunch and some very good information was passed along through the speakers.  The Doctors updated us on their research projects, and the board of directors was introduced. 
The board gave a brief update on changes for the Foundation and encouraging everyone to get involved in the projects and help out wherever possible. We need everyone working together to make this successful.  The new changes are slowly being implemented they will be more and more noticable as time goes on, and we will keep you updated.
Lori Hoag has resigned as Secretary and Sharlene Zagozewski has been voted in as the new secretary.  
We will try to update the Dragon Slayer at least quarterly.Send information to
admin@nlmsf.net

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2008 Survivors

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The Big Mac
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Mackinaw Bridge

BridgeFest
2008

Are you planning on attending BridgeFest?  August 30-Sept 1, 2008, Mackinaw City MI.  Once again most are staying at the Days Inn right across from our NLMSF Booth on Labor Day.  Joni Fixel has the info and I will get it from her and get it postedASAP.  These are the dates so you can make your plans.  Saturday will be a free day, there are so many things to do and see in Northern MI, you may pick your own.  Sunday evening we will gather for a group dinner, then Monday is the big bridge walk day.  Those who do not walk will man the booth and raise awareness.  We will have our annual BBQ cooked by Doug.  We will have LMS info available and we will be selling water. 



Cruise

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We are still planning a cruise December 6-11 from Mobile AL, to Mexico.  If you are interested you can call carnival at 1-800-819-3902 to make your reservations. Just say that you are part  of the group with Jane Moulds.  We are really lookingforward to this! $325.87 for an inside room, and $365.87 for an outside room.


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National LeioMyoSarcoma Foundation

4990 Northwind Drive

Suite 121

East Lansing, Michigan 48823

888-449-6805

email for web site-admin@nlmsf.net

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