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Ribbons

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The Ribbons that the NLMSF use to represent the foundation have a rich history and we want to tell you about some very special volunteers:

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The History of the Ribbons

The late Nancy Hoag is the creator and original ribbon maker.  Back in 2001 Nancy wanted to start an awareness project that would be world wide.  The official LMS ribbon was created,  The purple is for Ladonna Blackmeyer, the founder of the first LMS online support group.  She drank grape soda while she was having chemo.  The Green ribbon rose is for Orland Hetherington, co-owner of the original  online support group.

Originally Nancy made all the ribbons.  She made over 35,000 ribons while on chemo.  The ribbon project gave Nancy a reason and purpose to forge ahead when she wasn't feeling well.  Nancy Hoag passed July 18, 2002 from her LMS

After Nancy passed away from her LMS, Ed Hoag,  met and married Lori, who had also lost her spouse to a cancer.  Together  Ed and Lori continued to make the ribbons until our wonderful volunteers  Theresa, Ken and Cheryl took over the project.

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Cheryl and Theresa

LMS RIBBONS AND CARDS

For those of you who think these come from some factory boy are you WRONG!  My husband (Ken) and I (Theresa) took this over a couple of years ago from Ed and Lori. We felt like they do so much that some of the stuff needed to be done by others who are willing and able, leaving their time to raising more funds and having a life. So here is how the supplies arrive at my house:

A box full of the cards -  holes have to be punched in each and every one.

Rolls of LMS ribbons -  have to be cut and glued and then hole punched.

Pins - all have to be roughed up or the roses won't stick.

Roses - arrive on a 4 - 6 inch wire. Roses must be dipped in a stiffening solution and hung to dry. Then cut off the wire being careful not to cut too close or it falls apart. Once cut they are glued on to the pins. Then attached to the ribbon and then to the card. TA DA! You get the end result without ever realizing that three people work very hard and long on them.

Those three people are:

Ken Miller - roughs up the pins. We have it down to a science now and we use a little drill, still a very time consuming job. remember that we do thousands of theses.

Theresa Miller - Handles the roses. Stiffening, drying, cutting and gluing

Cheryl Miller - (no relation but a great friend to us)  Punches the holes in the cards, Cuts, glues and punches holes in the ribbon. Once I get the roses to her she puts them all together, and you get the finished product when you contact Lori that you need ribbons.

When ribbons are requested I am the one who counts and boxes them up. I normally include a note of some sort and maybe even a small presents. My husband takes it to the post office. We have made many many trips and are happy at the effort to get the word out.

My highest praise goes out to my husband Ken and my great friend Cheryl. Without their efforts it would take me forever to do this project.

Hope - Always,
Theresa

National LeioMyoSarcoma Foundation

129 Hawkins Rd

Maryland, NY 12116

607-638-9551

email for web site-admin@nlmsf.net

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