National LeioMyoSarcoma Foundation

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Welcome to NLMSF.org

OUR MISSION is to provide leadership in:

supporting research of LeioMyoSarcoma,

improving treatment outcomes of those affected by this disease

as well as fostering awareness in the medical community and general public.

 
 

Leiomyosarcoma is a rare form of cancer, which affects about four people in every million. It spreads through the blood stream and can affect the lungs, liver, blood vessels, or any other soft tissue in the body. Presently there is no cure, only remission if it can be attained, and this rare cancer can reappear anywhere and at any time. Because of its rarity, few doctors know how to treat it and it attracts very little research.

We mourn the loss of Patti Lloyd

 In June 2009, we lost another angel to LeioMyoSarcoma, Patti Lloyd. She worked very hard to promote awareness for LMS and raise money for the NLMSF. If you attended this year’s Hugfest, you knew how hard she and MaryAnn Croce worked to ensure everyone had an informative, memorable and supportive experience. Patti's hard work and smile will truly be missed but her spirit will always be present. The NLMSF gives our condolences to Patti's family.

 Information and Upcoming Events:

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NLMSF Cruise February 8, 2010

Carnival Cruise Line 1-888-CARNIVAL

Group #86D5S2

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HugFest 2010   

I am very happy to announce that HugFest 2010 will be April 16, 17, and 18, 2010, In BRANSON, MO. 

I have just returned from Branson, checking it out for HugFest and the place is awesome! 

 It is so much more than I expected.  The people there are wonderful helpful and caring.  I

was treated like royalty and I had a wonderful time.  The only problem was narrowing down

a place to hold HugFest, but I think I found the perfect place in the middle of town and walking

distance to several attractions.  It is a very nice hotel that has agreed to give us double queen

rooms for $70 per night, including a full hot breakfast.  [NLMSF members will be subsidized for

 half of their room]

Branson is a beautiful town in the Ozarks, surrounded by three beautiful lakes.  There are over

100 shows, and the town is full of entertainers and talent.  There are 250 + restaurants, three

theme parks, 300+ retail shops 18,800+ guest rooms and 200 holes of golf.  This is the best

family oriented place I have ever been to.  I cannot imagine anyone not enjoying Branson. 

Branson is very centrally located for most of the United States and within driving distance

for everyone, if they want to drive to HugFest.  If not there is a brand new airport in Branson

which is about 10 miles out of town and has shuttle service available for $13.50 to town. 

There are also taxi and limo service available.  There is also another airport in Springfield,

which is about 50 miles away.  I did not check out transportation from there as I flew into Branson.

Start making your plans to attend, and I hope to see you there!...Jane

NLMSF HugFest

April 15, 16, 17, 2010

BRANSON, MO

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If you are planning or thinking about a donation or a fund raiser, please make sure that all checks are made out to NLMSF and that the specific fund is in the memo on the check and send  it to:
NLMSF Donations
18623 County Road 12 S
Foley, AL 36535-3738
  
Thank you for your consideration!

If you have a fundraiser or awareness event 
PLEASE let us know about it!

admin@nlmsf.net

 

Click here to go to NLMSF Support page and access to our online Google support group. Join now!

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The National LeioMyoSarcoma Foundation, Inc.

The National LMS Foundation Inc. was formed on July 14, 2001. We were granted 501 c (3) status from the IRS as a non profit organization.

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Click here or on the picture to take you to the Foundation Flower page.

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National LeioMyoSarcoma Foundation

4990 Northwind Dr Ste 121

East Lansing, MI 48823

1-888-449-6805

admin@nlmsf.org

Fax 1-251-971-3735 or 1-517-853-0434

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